Could you live on £2 per day?

It doesn’t sound like much, does it? In fact, a cup of coffee from Starbucks costs more. But that’s the amount that people living below the poverty line in Scotland have to feed themselves, day in and day out. One million people in Scotland were considered to be living in poverty in 2017. As 33% of HD families in Scotland are in poverty, that means that hundreds of men, women and children are also living like this.

Like many people, I knew that Huntington’s disease had an economic impact on families, but didn’t think about it too deeply. I knew that the Financial Wellbeing Service  was doing great work, and that it was making a difference, but it was all a bit hypothetical for me. Then in January 2018 I saw a newspaper article which mentioned the £2 per day figure. I was sitting in a café at the time, with a jacket potato and a hot chocolate in front of me. I’d just spent £6 on my lunch, without really thinking about it. Suddenly, it all felt very real.

It was after  that I decided to try and see what I could make for that kind of money. The first thing I realised, of course, is that if I was living below the poverty line I wouldn’t have a full £2 to spend just on dinner – I’d need some of that money for other things. However, after a bit of research, I discovered that a big bag of porridge oats from Tesco costs just 70p and provides breakfast for multiple people for a week. Thank you, porridge! Assuming that meant I was only spending 5p per day on a filling breakfast, that left me with 90p per person for lunch and £1 per person for dinner.

This was going to be difficult, but possible. Of course, trying to feed myself and my husband on this kind of budget wasn’t just going to cost me cash. It was also going to cost me a lot more in the way of emotional labour than usual. I couldn’t just sling together a collection of ingredients, hope for the best, and call for a takeout if it went wrong. Instead I had to be very creative with very little, and I had to get it right first time. If you’re on this kind of budget, you have no safety net – if you burn your dinner, that means you go hungry.

Checking out prices in the supermarket, it also looked like I probably needed to go veggie for the week. Meat is not cheap! I did remember that as a poor student the only meat I could afford was a tin of cheap hot dogs, but to my shock, even those were 85p for a can of eight! I managed to shop around and find a replacement tin of hot dogs for 50p, but that would still be half my budget for this meal and I didn’t think those hot dogs would taste great by themselves. I sadly put them back down.

It also occurred to me as I was wandering around the supermarket that I was also pretty lucky to live in Glasgow, with a big Tesco within walking distance, which has a wide range of options at a reasonable price. If I was living in the village I was brought up in, I wouldn’t have access to any supermarkets, only a corner shop with a limited number of food options, and higher prices. Getting to a supermarket would cost me money in bus fares, which would eat into my limited funds.

But back to dinner! After some thought, I decided to go for egg fried rice and vegetables for the evening. For that, I needed half an onion (5p), 100g rice (10p), half a cabbage (10p), 1 carrot (5p), 1 egg (18p – a box of 8 eggs cost £1.40 and I’d use the rest later!), and a stock cube which I had in my cupboard already, but would have cost me only 5p or so (a box of 12 stock cubes costs about 70p). I also needed a spoonful of oil and a pinch of salt – probably another 10p worth of food. That all added up to 63 pence for a meal for two people.

I fried the veg first, starting with the onion and carrots for about five minutes or so, and then added the cabbage for another two minutes. Once my veg was looking soft, I chucked in the rice and stock cube, letting that heat up over the next two minutes. While that was cooking, I whisked the egg and then added that to the pan for a minute more, stirring constantly while I did so. When it was done, I seasoned with a bit of salt.

It didn’t taste too bad. Dinner for two, for under 35p per person.

The next day, I calculated how much I would normally spend on dinner and was shocked to discover that my dinner the night before (fish, mash and veg) had cost me nearly £3 per person. I’d spent almost ten times as much on my dinner as someone living below the poverty line in Scotland might.

I made a donation to SHA that week and decided to spend the rest of the week trying to cook for less, and appreciated the Financial Wellbeing Service a bit more. Of course, when you’re living in poverty, it isn’t just food that’s a worry – it’s bus fares, new shoes, or paying the gas bill – and the Financial Wellbeing Service can help with all of that as well.

Scottish Huntington’s Association provides financial advice and support to HD families completely free of charge but it costs the charity money to keep the service going. My week of living carefully, however, had given me an idea.

You may have already heard of some of these challenges – the Live Below the Line Challenge or the Hunger Challenge. I wanted to encourage SHA supporters to do something similar – to try and live on a limited budget for a week, and think a bit about the economic hardship which is an often underestimated impact of HD. But I didn’t just want to raise awareness. I wanted to make a difference.

My week of tight budgeting had meant that I had the money to donate to SHA, and the money to make a difference through my donation. I know that those small donations add up – for every person who makes the commitment to live frugally for a week and is able to donate £40 as a result, our Financial Wellbeing Advisors can afford to visit a new family and help them with their finances. And when our Advisors get involved, they can normally leave every family they work with better off to the tune of an average £3,000.

That’s when I got the idea for the Poverty Pledge. Find out more on our website if you fancy.

Tatties @ 3°

This blog submission comes straight from the SHA Office in Grampian. Big thank you to Paula Hepburn for writing and Liz Fraser for input. It’s a great piece where they talk about some of the joy that comes from working with our HD community and the fun they had going to the Tatty Barn Dance organised by fantastic fundraiser Fiona Grey.

People are amazing, that’s the conclusion we’ve come to in our office!

We all have ups and downs in life, some more than others, and within the realm of our work we come across the best of people in often the worst of times.  Our small team deals with folks from all walks of life that have the common thread of HD running through their family histories, but there’s always a smile or resilience that shines through as they deal with life as they know it.  Often it can be the smallest detail that triggers a memory or begins a spontaneous story to share which ends in laughter, and it’s those moments of laughter that help to keep going.

There was much laughter in our office recently when we were invited to a charity event organised by one of our HD families.  It was called a ‘Tattie Dance’ – some of us weren’t sure exactly what it entailed but it promised to be a great night with DJ, raffle and stovies.   The location was quite remote as it was out of town and the drive took us through some amazing scenery (isn’t Scotland beautiful?!).  We eventually arrived at the venue which was a huge barn on a local farm, and when we entered it was already busy with an excited atmosphere.  There were around 200 people and judging by the refreshments on the tables they were all determined to have a good time!  There were lots of opportunities for folks to give their support with games being played and raffle tickets sold with many prizes, including a toy tractor which produced lots of hilarity when a burly farmer won it!  Everyone joined in the goodwill of the evening and it was really heartening to see a small community pull together to support SHA.

As the evening went on the music got louder and folks were strutting their stuff on the dance floor, it was a great space for the shindig.  We asked what the barn was usually used for as it had massive coolers at one end….of course, it was the tattie shed, used for storing the crop of tatties at 3 degrees!